May 27, 2025
Over the years, I’ve spent lots of time in hospitals
as we navigate keeping Craig healthy despite his genetic heart
issues. This past week was another week spent in the hospital for
us and even though we’ve done this so many more times than we would
like… Every time I come out with a new perspective in someway or a
new thoughts on really how to keep your health as the highest
priority in life and what I think is the best way to keep all your
records and information organized and how to advocate for
yourself.
One of my favorite things about podcasting and
connecting with friends is sharing experiences because we’re all in
different situations every day so we learn different things. I’m
grateful to have the opportunity to share our journey and the tips
and lessons from being in such extreme situation at times and the
take-aways that I think are most valuable to everyone.
We’re talking about keeping good notes, showing
gratitude to those helping you, staying calm and not letting
overwhelming emotions take over and prioritizing the entire family
when anyone is going through something hard.
-Email for health records
-Notes on your phone for each person- one for overall
history and one more meds/supplements
-Book with everything printed
-Being realistic but optimistic
-Caring for whole family (Craig kept telling me to go
be with the kids)
-Letting people know whats going on in your world so
you get the extra support
-Stay strong minded and not weak - people help you
more
-Ask questions and take notes
-Know people’s names, show gratitude in anyway you
can
-Keep loving & doing normal feeling things through
it
-Even if nobody has issues - keep good records as you
go
-Even if you have so many years so go through - loop
in doctors to help you
-Push for doctors to connect with each
other
-Consider concierge if you need it
-Get your team of doctors going before you really
need it
-Keep health a top priority by reminding yourself
that it is a top priority - on your weekly list of things to
do
-Don’t wait when you feel like something is
off
-Don’t eat hospital food - it’s not good enough for
when you’re healing
-Do your own research for little things that can
help- and ask doctors - juicing, supplements etc.
-Lay out clearly who you are the health quarterback
for, then do all of this for them. It’s your most important
job.
CHEERS to us, the health quarterbacks!